Creates a ten year live kidney donor follow-up study which includes a one thousand dollars per year stipend for participants; provides two thousand dollars for all kidney donors for health-related expenses.
NEW YORK STATE ASSEMBLY MEMORANDUM IN SUPPORT OF LEGISLATION submitted in accordance with Assembly Rule III, Sec 1(f)
BILL NUMBER: A8441
SPONSOR: Santabarbara TITLE OF BILL:
An act to amend the public health law, in relation to creating a live
kidney donor follow-up study; and providing for the repeal of such
provisions upon expiration thereof
PURPOSE OR GENERAL IDEA OF BILL:
To create a donor follow-up study for New York living kidney donors and
incentivize donor participation through a yearly stipend. Also estab-
lishes health related expenses coverage for all living kidney donors for
five years post-donation.
SUMMARY OF PROVISIONS:
Section 1: Amends the public health law by adding a new section 4311,
which establishes the parameters of the New York living kidney donor
follow-up study and directs the Department of Health to contract with a
qualified research team to conduct the study.The study will follow
people who donate a kidney between January 1, 2023 and December 31, 2027
for 10 years from the date the transplant surgery takes place. Each
participant in the study will receive a $1,000 stipend for each year of
the follow-up study the individual fully participates in. Requires the
commissioner to submit a report to the governor, the temporary president
of the senate, the speaker of the assembly and the chairs of the senate
and assembly standing committees on health no later than December 31,
2023 and each subsequent year thereafter.In addition, establishes that
for the first 5 years post- donation, kidney donors shall each be enti-
tled to up to 2,000 to pay co-payments and other health related
expenses.
Section 2: Sets effective date.
JUSTIFICATION:
According to a November 15, 2021 report by City & State, Seven thousand
New Yorkers currently need a kidney and at current donation rates, just
1,500 are likely to receive one in the next year. Of the remaining
5,500, around 400 will die. Black New Yorkers, who constitute 18% of the
state population, will make up 36% of these deaths. Alongside this, New
York consistently ranks among the lowest in the nation in terms of
donation of organs, and has the seventh highest kidney waitlist in the
nation per capita. In light of these harrowing statistics and low rates
of kidney donation in New York State, it is clear that more must be done
to increase avail- ability of viable donors and ensure that all who are
in dire need of an organ transplant can have access to this life-saving
procedure.This legislation will establish a follow-up study specifically
for New York living kidney donors, in an effort to increase both the
data the state has on living kidney donors post-donation and also the
rate of kidney donation through an applied stipend granted per year of
full participation in the study. In addition, this legislation will
establish coverage of up to $2,000 for living kidney donors to pay
co-payments and other health related expenses for up to 5 years post
donation.
PRIOR LEGISLATIVE HISTORY:
Click here to enter text.
FISCAL IMPLICATIONS FOR STATE AND LOCAL GOVERNMENTS:
To be determined.
EFFECTIVE DATE:
This act shall take effect immediately and shall expire and be deemed
repealed January 1, 2038.
STATE OF NEW YORK
________________________________________________________________________
8441
2023-2024 Regular Sessions
IN ASSEMBLY
December 29, 2023
___________
Introduced by M. of A. SANTABARBARA -- read once and referred to the
Committee on Health
AN ACT to amend the public health law, in relation to creating a live
kidney donor follow-up study; and providing for the repeal of such
provisions upon expiration thereof
The People of the State of New York, represented in Senate and Assem-bly, do enact as follows:
1 Section 1. The public health law is amended by adding a new section
2 4311 to read as follows:
3 § 4311. New York living kidney donor follow-up study. 1. The depart-
4 ment shall contract with a qualified research team to conduct a prospec-
5 tive study of living kidney donor health. Such study shall follow people
6 who donate a kidney in New York between January first, two thousand
7 twenty-four and December thirty-first, two thousand twenty-eight for ten
8 years whose transplant surgery takes place. All donors who agree to
9 provide their follow-up data for use in such study will receive a
10 stipend of one thousand dollars for each year of follow-up they fully
11 participate in. The commissioner shall submit a report including recom-
12 mendations and findings based on this study to the governor, the tempo-
13 rary president of the senate, the speaker of the assembly and the chairs
14 of the senate and assembly standing committees on health no later than
15 December thirty-first, two thousand twenty-four and each December thir-
16 ty-first thereafter.
17 2. For the first five years post donation, kidney donors shall each be
18 entitled to up to two thousand dollars to pay copayments and other
19 health-related expenses.
20 § 2. This act shall take effect immediately and shall expire and be
21 deemed repealed January 1, 2039.
EXPLANATION--Matter in italics (underscored) is new; matter in brackets
[] is old law to be omitted.
LBD06899-01-3
