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A03674 Summary:

BILL NOA03674
 
SAME ASSAME AS S03320
 
SPONSORPheffer Amato
 
COSPNSRMcDonald, Lee
 
MLTSPNSR
 
Amd §2, Chap of 2023
 
Relates to extending provisions of law relating to the New York state adult cystic fibrosis program until 2030.
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A03674 Actions:

BILL NOA03674
 
01/29/2025referred to health
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A03674 Memo:

NEW YORK STATE ASSEMBLY
MEMORANDUM IN SUPPORT OF LEGISLATION
submitted in accordance with Assembly Rule III, Sec 1(f)
 
BILL NUMBER: A3674
 
SPONSOR: Pheffer Amato
  TITLE OF BILL: An act to amend chapter 769 of the laws of 2023, amending the public health law relating to the adult cystic fibrosis assistance program, in relation to the effectiveness thereof   PURPOSE OR GENERAL IDEA OF BILL: The purpose of this bill is to ensure that the program does not expire till at least March 31, 2030, expanding the dates of operation for 5 years.   SUMMARY OF PROVISIONS: Section 2 of chapter 769 of 2023 establishes the adult cystic fibrosis assistance program, which would reimburse the cost of providing health care or health insurance to eligible individuals with cystic fibrosis, will not expire till March 31 of 2030. To be an eligible individual for whom health care will be provided, one must be at least 21 years old, diagnosed with cystic fibrosis, and have resided in New York State for a minimum of..twelve continuous months immediately prior to application for services, not be eligible for medical benefits under any group or individual health insurance policy, and not be eligible for medical assistance pursuant to title 11 of article 5 of the social services law solely due to earned income. All eligible individuals shall be required to contribute 7% of their net annual income toward the cost of care and/or the cost of the health insurance premium.   JUSTIFICATION: Cystic fibrosis (CF) is a rare genetic disease that damages the lungs and digestive system, which affects approximately 1600 New Yorkers. Many CF patients rely on several prescription drugs and targeted, specific care plans for treatment. In 2023, the Adult Cystic Fibrosis Assistance Program (ACFAP) Was final- ly codified into law. ACFAP has historically provided reimbursements for out-of-pocket costs after enrollees spent 7% of their income on health- related expenses. These costs helped enrollees to cover inpatient and outpatient care, prescription drugs, lab and X-ray services, home health care, and physical therapy. Enrollees in ACFAP must maintain their own healthcare coverage which provides the most comprehensive coverage for their cystic fibrosis needs. ACFAP allows adults with CF to maintain private insurance coverage and access the care and treatments required for them to stay healthy. This bill would ensure that the program did not expire till March 31, 2030.   PRIOR LEGISLATIVE HISTORY: A.3089 (2023) and Chapter Amendment A.8515 (2024)   EFFECTIVE DATE: This act shall take effect immediately
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A03674 Text:



 
                STATE OF NEW YORK
        ________________________________________________________________________
 
                                          3674
 
                               2025-2026 Regular Sessions
 
                   IN ASSEMBLY
 
                                    January 29, 2025
                                       ___________
 
        Introduced  by  M.  of A. PHEFFER AMATO -- read once and referred to the
          Committee on Health
 
        AN ACT to amend chapter 769 of the laws of  2023,  amending  the  public
          health  law  relating to the adult cystic fibrosis assistance program,
          in relation to the effectiveness thereof

          The People of the State of New York, represented in Senate and  Assem-
        bly, do enact as follows:
 
     1    Section  1. Section 2 of chapter 769 of the laws of 2023, amending the
     2  public health law relating  to  the  adult  cystic  fibrosis  assistance
     3  program, as amended by section 14 of part B of chapter 57 of the laws of
     4  2024, is amended to read as follows:
     5    § 2. This act shall take effect immediately and shall expire March 31,
     6  [2025]  2030  when  upon  such  date the provisions of this act shall be
     7  deemed repealed.
     8    § 2. This act shall take effect immediately.
 
 
 
 
 
 
         EXPLANATION--Matter in italics (underscored) is new; matter in brackets
                              [ ] is old law to be omitted.
                                                                   LBD07090-01-5
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