NEW YORK STATE ASSEMBLY MEMORANDUM IN SUPPORT OF LEGISLATION submitted in accordance with Assembly Rule III, Sec 1(f)
BILL NUMBER: A3674
SPONSOR: Pheffer Amato TITLE OF BILL:
An act to amend chapter 769 of the laws of 2023, amending the public
health law relating to the adult cystic fibrosis assistance program, in
relation to the effectiveness thereof
PURPOSE OR GENERAL IDEA OF BILL:
The purpose of this bill is to ensure that the program does not expire
till at least March 31, 2030, expanding the dates of operation for 5
years.
SUMMARY OF PROVISIONS:
Section 2 of chapter 769 of 2023 establishes the adult cystic fibrosis
assistance program, which would reimburse the cost of providing health
care or health insurance to eligible individuals with cystic fibrosis,
will not expire till March 31 of 2030. To be an eligible individual for
whom health care will be provided, one must be at least 21 years old,
diagnosed with cystic fibrosis, and have resided in New York State for a
minimum of..twelve continuous months immediately prior to application
for services, not be eligible for medical benefits under any group or
individual health insurance policy, and not be eligible for medical
assistance pursuant to title 11 of article 5 of the social services law
solely due to earned income. All eligible individuals shall be required
to contribute 7% of their net annual income toward the cost of care
and/or the cost of the health insurance premium.
JUSTIFICATION:
Cystic fibrosis (CF) is a rare genetic disease that damages the lungs
and digestive system, which affects approximately 1600 New Yorkers.
Many CF patients rely on several prescription drugs and targeted,
specific care plans for treatment.
In 2023, the Adult Cystic Fibrosis Assistance Program (ACFAP) Was final-
ly codified into law. ACFAP has historically provided reimbursements for
out-of-pocket costs after enrollees spent 7% of their income on health-
related expenses. These costs helped enrollees to cover inpatient and
outpatient care, prescription drugs, lab and X-ray services, home health
care, and physical therapy. Enrollees in ACFAP must maintain their own
healthcare coverage which provides the most comprehensive coverage for
their cystic fibrosis needs. ACFAP allows adults with CF to maintain
private insurance coverage and access the care and treatments required
for them to stay healthy.
This bill would ensure that the program did not expire till March 31,
2030.
PRIOR LEGISLATIVE HISTORY:
A.3089 (2023) and Chapter Amendment A.8515 (2024)
EFFECTIVE DATE:
This act shall take effect immediately
STATE OF NEW YORK
________________________________________________________________________
3674
2025-2026 Regular Sessions
IN ASSEMBLY
January 29, 2025
___________
Introduced by M. of A. PHEFFER AMATO -- read once and referred to the
Committee on Health
AN ACT to amend chapter 769 of the laws of 2023, amending the public
health law relating to the adult cystic fibrosis assistance program,
in relation to the effectiveness thereof
The People of the State of New York, represented in Senate and Assem-bly, do enact as follows:
1 Section 1. Section 2 of chapter 769 of the laws of 2023, amending the
2 public health law relating to the adult cystic fibrosis assistance
3 program, as amended by section 14 of part B of chapter 57 of the laws of
4 2024, is amended to read as follows:
5 § 2. This act shall take effect immediately and shall expire March 31,
6 [2025] 2030 when upon such date the provisions of this act shall be
7 deemed repealed.
8 § 2. This act shall take effect immediately.
EXPLANATION--Matter in italics (underscored) is new; matter in brackets
[] is old law to be omitted.
LBD07090-01-5
